Columnist ML Burke writes about two “transformative” experiences in her life: her first trip on the famous wooden roller-coaster at Playland in years, and a “Virtual Dementia Tour” that helped her understand what her father and her aunt had gone through living with Alzheimer’s. (Ruth Hartnup/flickr.com photo)

COLUMN: Alternate realities in aging

ML Burke writes about how a “virtual dementia tour” helped her understand what life with Alzheimer’s is like

By ML Burke, guest columnist

I’d like to share two transformative experiences with you. The first was when I re-lived an event from my teens only to discover it was not in the least as I remembered. I’m referring to the thrill of riding the old wooden roller-coaster at the PNE. The rush of adrenaline, with its gravity-defying drops and turns, was permanently etched in my young mind as the best ride ever.

When my eight-year-old grandson was finally tall enough to ride this iconic Coaster I happily offered to take him. The little guy and not-so-little me were locked by a bar into our seat which had space for at least one more adult. With great anticipation, our string of cars noisily climbed the first and tallest hill.

From there all I can say is the event was like a series of car crashes, lurching, up, down, sideways, again and again. There were no seatbelts so we kept sliding side to side, with me crushing the poor boy on every turn. People were screaming but our open-mouthed voices were locked in silent terror. Afterwards my grandson was very stoic, but strangely quiet. We were bruised and battered and just relieved to be alive.

My second transformative event occurred recently when I signed up to do a Virtual Dementia Tour at The Wexford. The Waterford and The Wexford are two popular, privately-owned retirement communities in Tsawwassen run by Bria Communities. I congratulate them on conducting a series of experiential dementia tours for health professionals and caregivers to better understand what it’s like to have dementia.

Both my father and aunt had Alzheimer’s, so I thought I knew more than many. I also imagined this tour would involve a virtual reality mask, which sounded like fun. I was so wrong on both counts. Wearing a VR mask would have been easier than actually experiencing what someone with mild to severe dementia feels.

Without giving away too many specifics I can tell you this: I was told to allow 30 minutes and arrive 15 minutes early. A paramedic also did the tour. We signed waivers and answered a few simple questions about our frames of mind. After getting prepped we entered the tour area. Throughout the tour I was physically uncomfortable, often distracted, frustrated, very confused and fearful.

When it ended I was quite emotional. It was so realistic that a huge sadness enveloped me from knowing my father and aunt had suffered so. But it also gave me deeper understanding of how we need to care for people with dementias. Here’s a few practices I already knew, but now understand “why.”

Slow everything down. Give time to complete tasks. Reduce noise and bright lights. Allow them to do repetitive jobs and to socialize with others. Learn to decipher what they want/need. Stay positive, reinforce, encourage and come to their rescue. Like a parent caring for a child, take care of yourself so you are able to take care of them.

I recommend this experience for caregivers working with dementias. Unlike my ill-advised roller-coaster ride, this tour could change how you go forward with your life and theirs.

ML Burke retired from the health sector to work on issues such as affordable housing. She sits on the Delta Seniors Planning Team, the City of Delta’s Community Liveability Advisory Committee and the BC Seniors Advocate’s Council of Advisors.



editor@northdeltareporter.com

Like us on Facebook and follow us on Twitter

Just Posted

Police use lacrosse sticks to rescue ducklings from Delta storm drain

Delta police rescued five of six ducklings found in a Highway 17 storm drain on June 21

Surrey RCMP raises Pride flag Monday amid din of protesters

There were about 30 protesters on either side, and 20 Mounties doing crowd control

City of White Rock, SFN reaffirm close ties

National Indigenous Peoples Day celebrated on June 21

GUEST COLUMN: Looks like TransLink aims to ‘short-circuit’ plan for rail service on Interurban corridor

‘We are not going away,’ writes Rick Green, of South Fraser Community Rail Group

Swansong Ride2Survive raises $1M-plus in single-day cycle from Kelowna to Delta

Saturday’s ride was the 15th and final fundraiser of its kind for North Delta-based charity event

Video shows fireworks shot at swan in Alberta

Alberta Fish and Wildlife is investigating the incident in Grande Prairie

Grey-haired bank robber hit with dye pack in Langley heist

Police are looking for an older man who may be stained with dye

‘Text neck’ causing bone spurs to grow from millennials’ skulls, researchers say

Technology use from early childhood causing abnormal bone growths in 41 per cent of young adults

B.C. teen killed by fallen tree on field trip remembered as hero

13-year-old Tai Caverhill was the first to spot the tree falling and warned his friends

Should B.C. get rid of Daylight Saving Time?

The province wants to know, as state governments down south make the move

Air Canada reviewing how crew left sleeping passenger on parked plane

In a Facebook post, the woman said she woke up ‘all alone’ on a ‘cold dark’ aircraft

Canadians crash out of Women’s World Cup in 0-1 loss to Sweden

Canada missed a chance to tie the game on a penalty shot

New Lower Mainland bistro caters to board game fans and families

Local food and games at every table is the formula for the new business

Four-year-old boy assaulted at B.C. soccer game

It happened at a weekend tournament in Ashcroft

Most Read