Dr. Stephen Beed, medical director of Nova Scotias organ and tissue donation program, is seen at the Halifax Infirmary in Halifax on Thursday, Jan. 14, 2021. Nova Scotia is the first province in the country to implement presumed consent for human organ and tissue donation. Under the Human Organ and Tissue Donation Act all people in Nova Scotia will be considered potential organ donors unless they opt out. THE CANADIAN PRESS/Andrew Vaughan

Dr. Stephen Beed, medical director of Nova Scotias organ and tissue donation program, is seen at the Halifax Infirmary in Halifax on Thursday, Jan. 14, 2021. Nova Scotia is the first province in the country to implement presumed consent for human organ and tissue donation. Under the Human Organ and Tissue Donation Act all people in Nova Scotia will be considered potential organ donors unless they opt out. THE CANADIAN PRESS/Andrew Vaughan

Nova Scotia’s presumed consent organ donation law now in effect

Legislation passed in April 2019 finally took effect Monday following more than 18 months of work

Nova Scotia is now the first jurisdiction in North America to implement presumed consent around organ donation, a move health officials believe could see a significant rise in the number of donors over the next few years.

Legislation passed in April 2019 finally took effect Monday following more than 18 months of work to ensure provincial systems were equipped to handle the change.

Under the Human Organ and Tissue Donation Act, all people in Nova Scotia will be considered potential organ donors unless they opt out.

“To my knowledge nobody else is close to considering this, but many places are thinking about it,” said Dr. Stephen Beed, medical director of Nova Scotia’s organ and tissue donation program. “We have an opportunity to transform a component of the health care system and that just does not happen very often.”

In an interview last week, Beed said the work to bolster the province’s organ donation program has focused on planning, education and public awareness.

He said the system has, in effect, been “rebooted” with the recruitment of several donation physicians and an increase to the number of system coordinators, who have also seen a change in their training. Overall, 27 new professionals have been brought into the system over the last three years.

In addition, a donation data system has been developed to assess the program’s performance. The province plans to spend $3.2 million this fiscal year to bolster the system.

“Overall I honestly think that the system change is the most important part,” Beed said of the shift to presumed consent.

He said that was the message delivered to Premier Stephen McNeil when he first approached health officials with the idea for the legislation.

“We said, ‘If you change the law all you really have is words on a piece of paper, but if you change the law and then support the redesign of our system then you have reason to be optimistic’.”

Beed said organ donation rates increased by as much as 35 per cent in European countries such as Belgium and Spain after they adopted an opt-out system, though he noted other jurisdictions that made the switch have had the opposite experience.

But one prospective organ recipient said the success stories abroad have left her more optimistic about matters closer to home.

“I am very proud that Nova Scotia is the trailblazer for this,” said Anita MacDonnell of Halifax, who is awaiting a kidney transplant.

“I was very encouraged when they announced this back in 2019.”

MacDonnell, who turns 60 on Wednesday, was approved for a new kidney last May and started dialysis in October.

She and her friend Brenda Mackenzie, also of Halifax, suffer from a genetic kidney disease that has seen several of their siblings and both of their mothers require transplants in the past.

Both women undergo dialysis three nights a week for four hours at a time and liken the life-saving process to having a part-time job.

Mackenzie, 60, describes her wait for a kidney as “pretty nerve-wracking.”

“So I guess my hope obviously would be that with this (change) that so many more people would be able to be transplanted,” she said. “That’s what the ultimate hope is.”

The new approach hasn’t received universal support on its way to becoming provincial law.

Some civil libertarians balked at the legislation when it was first proposed, raising concerns around governments having the power to tell people what to do with their bodies. Other opponents expressed potential cultural and religious concerns about the move.

Beed said he believes those issues have been addressed through the development of an opt-out registry and safeguards such as double checking with families to ensure the last known wishes of a potential donor are honoured. Those who tell their families that they don’t want to be donors will see those instructions respected, he said, even if they haven’t formally opted out.

In addition, certain groups will be exempt such as new immigrants, transient residents of Nova Scotia, and people who don’t have capacity to make their own decisions. Beed said talks are also continuing with leaders of religious and faith communities to ensure they are “engaged” with the system.

Peggy John, the acting director for the organ and tissue donation and transplantation program at Canadian Blood Services, agrees the opt out program will only be as good as the strength of the system put in place to support it.

John, whose organization is the national collaborating body for provincial transplant systems, said the end goal should be to increase the opportunities for transplant for patients who are in need.

According to the most recent figures compiled by Canadian Blood Services, 250 Canadians died while waiting for a transplant in 2019 — an increase from 223 in 2018. They also showed that Canada still has a shortage of organs, with 4,419 patients still waiting for transplants at the end of 2019.

John said the new Nova Scotia law will be an opportunity to observe and to learn about what might work elsewhere to potentially boost donation rates.

“We are keen to see what’s going to happen,” she said. “We know they (Nova Scotia) have been approaching this in the right way and we will continue to watch what the outcome will be.”

Keith Doucette, The Canadian Press

Like us on Facebook and follow us on Twitter.

Want to support local journalism? Make a donation here.

Get local stories you won't find anywhere else right to your inbox.
Sign up here

Just Posted

In a letter to Fraser Health board chair Jim Sinclair and president and CEO Dr. Victoria Lee Jan. 28, Delta Mayor George Harvie pitched the City of Delta become the lease holder of the Harold and Veronica Savage Centre for Supportive Care building after it is vacated by the Delta Hospice Society. (The Canadian Press photo)
Delta Hospice Society must vacate premises by March 29: Fraser Health

The health authority served the society a notice of breach of lease on Feb. 25

RCMP are looking for “an unknown man who wrapped his arms around” a female youth in Clayton Feb. 26. (Black Press file photo)
Youth assaulted by unknown man in Cloverdale

Mounties looking for ‘tall and thin’ Caucasian man in his 40’s with short dark brown hair

Framed photos of Travis Selje and other items fill the top of a dresser in his bedroom. (Photo: Tom Zillich)
Crown says defence case epilepsy caused fatal Surrey crash fails on balance of probabilities

‘She very clearly had some form of control over that vehicle,’ Crown argues

Alex Browne photo The felling of two mature Douglas Fir ‘eagle trees’ on Oxford Street, just south of Prospect Avenue, in June of 2019, prompted a review of tree management bylaws and policies now before White Rock council. The trees were felled on instructions from City of White Rock staff, who said the work was necessary because they had become hazardous. (File photo)
City of White Rock mulls ‘tree protection’ bylaw

More stringent measures needed to protect canopy – councillor

teeaser
Surrey TEDx talks move online with ‘fast-paced’ event that’s free to watch March 27

Last year’s TEDxBearCreekPark attracted 900 spectators to Bell theatre

Dr. Bonnie Henry leaves the podium after talking about the next steps in B.C.’s COVID-19 Immunization Plan during a press conference at Legislature in Victoria, B.C., on Friday, January 22, 2021. THE CANADIAN PRESS/Chad Hipolito
COVID: 589 new cases in B.C., and 7 new deaths

No new outbreaks being reported Feb. 26

Staff from the Marine Mammal Rescue Centre, passersby, RCMP and Nanaimo Fire Rescue carried a sick 300-kilogram steller sea lion up the steep bluff at Invermere Beach in north Nanaimo in an attempt to save the animal’s life Thursday. (Photo courtesy Marine Mammal Rescue Centre)
300-kilogram sea lion muscled up from B.C. beach in rescue attempt

Animal dies despite efforts of Nanaimo marine mammal rescue team, emergency personnel and bystanders

Gina Adams as she works on her latest piece titled ‘Undying Love’. (Submitted photo)
‘Toothless’ the kitty inspires B.C. wood carver to break out the chainsaw

Inspired by plight of a toothless cat, Gina Adams offers proceeds from her artwork to help animals

B.C. Finance Minister Selina Robinson presents bill to delay B.C.’s budget as late as April 30, and allow further spending before that, B.C. legislature, Dec. 8, 2020. (Hansard TV)
How big is B.C.’s COVID-19 deficit? We’ll find out April 20

More borrowing expected as pandemic enters second year

Passengers aboard Komagata Maru in Vancouver’s Burrard Inlet, 1914 - Library and Archives Canada image
Abbotsford council is asked to rename street in memory of Komagata Maru victims

Most of 376 the passengers aboard ship were denied entry into Canada in 1914

The first of 11 Dash 8 Q400 aircraft's have arrived in Abbotsford. Conair Group Inc. will soon transform them into firefighting airtankers. (Submitted)
Abbotsford’s Conair begins airtanker transformation

Aerial firefighting company creating Q400AT airtanker in advance of local forest fire season

The Canada Revenue Agency says there were 32 tax fraud convictions across the country between April 2019 and March 2020. (Pixabay)
Vancouver man sentenced to 29 months, fined $645K for tax evasion, forgery

Michael Sholz reportedly forged documents to support ineligible tax credits linked to homeownership

Then-Liberal leader Andrew Wilkinson looks on as MLA Shirley Bond answers questions during a press conference at Legislature in Victoria. (Chad Hipolito / THE CANADIAN PRESS)
B.C. Liberal party to choose next leader in February 2022

Candidates have until Nov. 30 to declare whether they are running

After nearly 10 months of investigations, Mounties have made an arrest in the tripping of an elderly woman in Burnaby this past April. (RCMP handout)
VIDEO: Mounties charge suspect for tripping elderly woman near Metrotown in April

32-year-old Hayun Song is accused of causing bodily harm to an 84-year-old using her walker

Most Read