Shantee Anaquod pictured with her younger brother, Jonathan, before becoming sick. After two months of being bed ridden in a hospital, Anaquod gets to spend Christmas at home with her family. Submitted photo

VIDEO: AHUS patient Shantee Anaquod is home for Christmas

Less than a month after receiving first dose of $750K drug, 23 year old healthy enough to go home

It’s a Christmas present Shantee Anaquod didn’t think she’d get.

Two months after being diagnosed with the rare blood disease Atypical Hemolytic Uremic Syndrome (aHUS), Shantee, 23, will get to spend the holidays at home with her family.

The UBC student has been in hospital since Oct. 15, when flu-like symptoms escalated into a life-threatening condition. The treatment used for the disease — Soliris — costs $750,000 per year to administer, and was not covered by extended medical or the government.

READ MORE: Langley mom pleads for help in securing $750,000 life-saving drug for daughter

READ MORE: Government approves funding of $750,000 drug for B.C. woman

But after a storm of media attention, the government agreed to finance the drug, and less than a month after her first dose, Shantee is well enough to return home.

“I was really excited — super excited — because I was just waiting to know when I was going to go home,” Shantee told the Langley Times during a Soliris appointment at Vancouver General Hospital on Tuesday.

“I have more energy, and I feel like I’m getting stronger, slowly, so that’s nice. I don’t have as much pain in my body.”

Shantee was officially discharged from the hospital in the afternoon on Dec. 14, and spent the first two nights at her mom’s house. Last weekend, she was able to return to her rental in Vancouver, where she lives with three roommates.

“It was pretty great, I got a lot of sleep and got to do what I want,” Shantee said of her first night home. “It’s a little harder managing everything without a nurse … but my boyfriend helps me out quite a bit, though. He brings me food and makes sure that I can get up the stairs.”

Equally as excited about Shantee’s recovery is her family. Shantee’s brother, Jonathan, 9, made it his birthday and Christmas wish to have his sister home for the holidays.

“Just her being home, the idea of not having to celebrate Christmas in the hospital or bring her out on a day pass is phenomenal,” said her mother, Jennifer.

“And she’s been looking at turkey recipes for the last three weeks, she’s determined to cook the turkey this year.

“It’s been pretty great watching her get a little bit better every week.”

No one, including Shantee, knew that she would be discharged from hospital so soon. She still has to take a significant amount of medication every day, and undergo dialysis three to four times per week. Her Soliris dosage — which takes about an hour to administer — will now be reduced from once a week to every second week.

She also lost 25 pounds in the last two months, and has to work on gaining back her weight and strength.

“They had told us (she would be discharged) Wednesday (Dec. 13), and then Wednesday came and they said, ‘No you can’t go. Your breathing is not good enough yet, maybe we’ll look at Friday or Saturday,’” Jennifer told the Langley Times last week.

“And then she called me yesterday (Dec. 14) — I was at my staff luncheon — and said, ‘I’m going. They’re discharging me, I’m going home.’

“I was like, ‘What?’ So yeah, we had no idea.”

To make the holidays even better, Jennifer has her own homecoming to celebrate.

As she coped with Shantee’s medical battle, Jennifer also had to deal with another emergency at her house in Langley. Shortly before Shantee became ill, her neighbour’s hot water tank exploded and flooded her home. Jennifer and Jonathan spent the last couple of months in a furnished apartment in Langley City provided by her insurance.

Just a couple of weeks ago, they finally moved into a new, permanent home at a co-op in Surrey.

“I don’t know how it happened. Usually the waiting list is years, but for whatever reason, they called and we got in. So that was really well timed,” Jennifer said.

READ MORE: Langley teen seeks funding for $750,000 drug Soliris

Now, the Anaquod family is paying it forward by helping others with medical struggles. They are using what they learned through the process of obtaining Soliris to advocate for six-year-old Landen Alexa from Sooke, who is in need of a $19,000-per-month drug to treat Systemic Juvinile Idiopathic Arthrits.

Charity Cassie+Friends has been campaigning on behalf of Landen, and it just so happens that the same charity helped out Jonathan through treatments for his rare disorder, Behcet’s disease.

READ MORE: Six-year-old boy needs $19,000 a month to treat rare form of arthritis

“How things work behind the scenes was really surprising. And knowing there’s so much red tape and so many barriers to access medications and health care, for not just Shantee, but for so many people out there. I think that’s really, it was shocking to me,” Jennifer said.

“There’s been quite a few people reaching out already, so I try to connect with everybody that I can. I wish I had a magic answer.”



miranda@langleytimes.com

Like us on Facebook and follow us on Twitter

Just Posted

Former city manager George Harvie to run for Delta mayor

Harvie’s Achieving for Delta salte includes former fire chief Dan Copeland

UPDATE: Surrey RCMP release sketch of ‘suspicious person’ who approached child outside school

Surrey RCMP describe the suspect as South Asian, in his 40s or younger, with a beard and a blue turban

International swimming events about to make a splash in Surrey

Espoir Canadian Championships and FINA Artistic Swimming World Series to be held at Surrey Sport and Leisure Complex

Fire in South Surrey Tuesday evening

It happened near King George Boulevard and 27B Avenue

Surrey’s Alex Sangha receives Meritorious Service Medal

Sangha recognized for founding Sher Vancouver, a not-for-profit society for LGBTQ South Asians

VIDEO: Morgan Freeman to voice announcements on SkyTrain, buses

TransLink unveils new credit card feature ahead of busy tourist season

Barclay Parneta new Giants GM

Becomes third General Manager in the history of the franchise

5 to start your day

Mounties cleared in shooting man with toy gun, woman sexually assaulted in Surrey and more

PNE’s Summer Night Concerts by Village People, Lauper, Goo Goo Dolls, more

Mostly retro sounds at this year’s fair in Vancouver, starting Aug. 18

Notley to skip western premiers meeting today, but slams leader who’s there

Notley told reporters that B.C. Premier John Horgan is trying to shut down the Trans Mountain pipeline

No suitors emerge for pipeline project stake as Kinder Morgan deadline looms

Analysts and observers remain perplexed by Finance Minister Bill Morneau’s comment last week that “plenty of investors would be interested in taking on this project”.

Energy wells plugged as Hawaii’s volcano sends lava nearby

A spike in gas levels could prompt a mass evacuation in Hawaii

Trump seethes over Russia probe, calls for end to ‘SPYGATE’

“SPYGATE could be one of the biggest political scandals in history!” Trump said on Twitter

Grads receive BC Transit passes

BC Transit provides passes to graduating students in more than 50 communities

Most Read