Four-month-old Lucy Van Doormaal has been diagnosed with spinal muscular atrophy. A GoFundMe campaign is underway to fund a pricey drug to help her fight the condition. That effort is also being supported with a charity car-wash in South Surrey on July 19. (Contributed photo)

Four-month-old Lucy Van Doormaal has been diagnosed with spinal muscular atrophy. A GoFundMe campaign is underway to fund a pricey drug to help her fight the condition. That effort is also being supported with a charity car-wash in South Surrey on July 19. (Contributed photo)

South Surrey car wash to help raise money for baby in need of $3M drug

Four-month-old Lucy Van Doormaal needs expensive treatment to fight rare genetic disorder

This weekend, wash your car for a good cause.

On Sunday (June 19), South Surrey auto-detailing business, Splashes, will host a fundraising car wash in support of a Vancouver family whose infant daughter Lucy is in need of urgent medical care – and one of the world’s most expensive drugs – to help stop the progression of the four-month-old’s spinal muscular atrophy (SMA).

SMA is a rare, progressive genetic disorder – Lucy Van Doormaal was diagnosed at just five weeks old – that leads to trouble breathing, feeding and swallowing, and other issues. Without treatment, SMA is likely to be fatal within the first two years of life, a news release issued by Lucy’s family states.

Lucy, the release adds, is a good candidate for a “ground-breaking new gene therapy” drug called Zolgensma, however, the one-time-only dose is not yet approved in Canada and costs a whopping $3 million.

So far, more than 41,000 people – including Vancouver-born actor Ryan Reynolds – have donated to a ‘Life for Lucy’ GoFundMe campaign, raising more than $1.8 million.

“The amount of support we have been getting is unbelievable – we are so full of hope that we will be able to reach what, at one point, seemed like an impossible goal. The momentum of the past few days has been incredible,” Lucy’s parents Laura and Scott Van Doormaal said.

Research has shown that the longer a child waits for treatment, the more irreversible the damage from this neuromuscular disorder.

“It is overwhelming to know that there is something out there that could change Lucy’s life,” said Laura.

“When you have a child, you would do anything for them. We are working around the clock to reach our $3 million goal.”

Sunday’s fundraiser at Splashes was spurred by the suggestion of a customer, who is a family friend of the Van Doormaals, car wash officials said.

“Our business gives back to a local charity each month, however, we saw this as an opportunity to host a one-day fundraiser to raise as much money as possible for this family,” explains an email detailing the event.

It’s to take place at 103-3050 King George Blvd., from 10 a.m. until 5 p.m. and will include free touchless car washes, though donations will be collected on site.

Cash, debit and credit-card donations will be accepted, with 100 per cent of the proceeds going to the family.

COVID-19 safety precautions will also be followed, Splashes staff said.

From noon until 4 p.m., Tacofino will also be on site, serving food, with a portion of those proceeds also being donated to the cause.

The GoFundMe campaign can be found at https://ca.gofundme.com/f/lucyvandoormaal



editorial@peacearchnews.com

Like us on Facebook and follow us on Twitter

fundraiserSurrey

Get local stories you won't find anywhere else right to your inbox.
Sign up here

Just Posted

Fraser Health has declared a COVID-19 outbreak at Newton Elementary School in Surrey, according to an information bulletin Friday, Nov. 27, 2020. (Image: Google Street View)
COVID-19 outbreak declared at second Surrey elementary school

Newton Elementary closed for two weeks, set to reopen Dec. 14

Joy Johnson, seen here during an installation ceremony on Oct. 22, is Simon Fraser University’s 10th president and vice-chancellor. (Submitted photo)
SFU’s Surrey campus tackling COVID-19-related research

‘We can learn now,’ SFU president Joy Johnson said, ‘so should something like this happen again we’ll be prepared. We have to learn from this current pandemic’

Mayor Darryl Walker gives a welcoming hug to Semiahmoo First Nation Chief Harley Chappell at the inaugural meeting of the current White Rock council in 2018. (Alex Browne photo)
White Rock council under fire for inaugural prayer

BC Humanist Association charges city violated Supreme Court ruling two years ago

Chief Robert Gladstone of Shxwha:y Village at a federal flood funding announcement April 24, 2019. (Jenna Hauck/Chilliwack Progress file)
Consortium of Indigenous chiefs seeking a way to participate in cannabis economy

All Nations Chiefs from the Shxwha:y, Cheam, Soowahlie and Sq’ewlets holding online forum Dec. 2

Delta Fire unveiled its new mascot, Flash, this week at North Delta’s Cougar Canyon Elementary School with Grade 2 student Theo Wong, who won pizza for his entire class for submitting the mascot’s name. (Submitted photo)
PHOTOS: Delta fire debuts new mascot

‘Flash’ presented a class at North Delta’s Cougar Canyon Elementary with a pizza lunch

A woman wears a protective face covering to help prevent the spread of COVID-19 as she walks along the seawall in North Vancouver Wednesday, November 25, 2020.THE CANADIAN PRESS/Jonathan Hayward
911 new COVID-19 cases, 11 deaths as B.C. sees deadliest week since pandemic began

Hospitalizations reach more than 300 across the province

Black Press Media and BraveFace have come together to support children facing life-threatening conditions. Net proceeds from these washable, reusable, three-layer masks go to Make-A-Wish Foundation BC & Yukon.
Put on a BraveFace: Help make children’s wishes come true

Black Press Media, BraveFace host mask fundraiser for Make-A-Wish Foundation

Screenshot of Pastor James Butler giving a sermon at Free Grace Baptist Church in Chilliwack on Nov. 22, 2020. The church has decided to continue in-person services despite a public health order banning worship services that was issued on Nov. 19, 2020. (YouTube)
2 Lower Mainland churches continue in-person services despite public health orders

Pastors say faith groups are unfairly targeted and that charter rights protect their decisions

A big job: Former forests minister Doug Donaldson stands before a 500-year-old Douglas fir in Saanich to announce preservation of some of B.C.’s oldest trees, July 2019. (B.C. government)
B.C. returning to ‘stand-alone’ forests, rural development ministry

Horgan says Gordon Campbell’s super-ministry doesn’t work

Alexandre Bissonnette, who pleaded guilty to a mass shooting at a Quebec City mosque, arrives at the courthouse in Quebec City on February 21, 2017. THE CANADIAN PRESS/Mathieu Belanger - POOL
Court strikes down consecutive life sentences; mosque shooter has prison term cut

The decision was appealed by both the defence and the Crown

Gold medallists in the ice dance, free dance figure skating Tessa Virtue and Scott Moir, of Canada, pose during their medals ceremony at the 2018 Winter Olympics in Pyeongchang, South Korea, Tuesday, Feb. 20, 2018. THE CANADIAN PRESS/AP-Charlie Riedel
Olympic champions Virtue, Moir and Tewksbury among 114 Order of Canada inductees

Moir and Virtue catapulted to national stardom with their gold-medal performances at the Winter Olympics in 2018

Shoppers line up in front of a shop on Montreal’s Saint-Catherine Street in search of Black Friday deals in Montreal, Friday, Nov. 27, 2020. THE CANADIAN PRESS/Paul Chiasson
Black Friday shopping in a pandemic: COVID-19 closes some stores, sales move online

Eric Morris, head of retail at Google Canada, says e-commerce in Canada has doubled during the pandemic.

Chilliwack school board trustee Barry Neufeld is taking heat over using a ableist slur to refer to three Black Press employees. (Paul Henderson/ Progress file)
BC School Trustees Association president keeps heat on Chilliwack Trustee Barry Neufeld

In a news release, Stephanie Higginson called on voters to take careful note of Neufeld’s behaviour

School District 27 announced the first confirmed case of COVID-19 this week (Nov. 23) at Lake City Secondary School Williams Lake campus. (Angie Mindus photo - Williams Lake Tribune)
Entire gym class at northern B.C. high school isolating after confirmed COVID case

Contact tracing by Interior Health led to the quarantine

Most Read